Well, it’s not someone who has a passion for flatware!
I blog, tweet and speak a lot about being a ‘spoonie’. I live with a number of chronic health problems, including Bile Acid Malabsorption, Fibromyalgia, Depression, Alopecia and Benign Paroxymal Positional Vertigo. There are others … I’ve discovered that chronic illnesses love to bring friends to join the party. It would take all day for me to list all my symptoms and both I, and you, would get awfully bored. In essence, I live with chronic pain, fatigue, chronic nausea and dizziness, a big bald patch, dodgy skin and a foggy brain, and I have a very close relationship with my loo. Despite dealing with depression, I am chronically positive and cheerful … because people with depression are ill, not choosing to be miserable. (I’m sure you, enlightened reader, knew that, but there are some who are taking their time about getting the message.)
The term #spoonie (it has since become a popular hashtag) was coined by Christine Miserandino Donato (@bydls) in her moving and witty essay, The Spoon Theory, about the realities of daily life with chronic illness or disability. It’s a very engaging piece and I strongly urge … nay, I implore you, to read it.
You can find it here.