A look at the BIG plan …

With me, there’s ALWAYS a plan. I discovered Bullet Journalling last year … and was as happy as the proverbial pig in muck/mud/sh*t – however you choose to term it, having discovered a cool system to both simplify and maximise my planning activities!

I was in some pretty deep doo doo at the time and struggling to keep afloat, 2016 being my annus horribilis, but at least I had a ‘customizable and forgiving organization system’ to help me… And one, according to the creators of the system, that will ‘teach you to do more with less,’ surely that’s got to be a goodie for a spoonie? 

Tea is oft purported to be the cure for everything. Personally, although I like tea, I think stationery is the answer to everything. A nice new notebook, PENS, lots of lovely PENS, and paper, and labels and stickers too … oh the joy! Give me those and I’ll scribble and doodle my way to a master plan. If you’re a stationery/planner geek, you probably already know the joy of just doing a Google image search for ‘bullet journal’ …

A Bullet Journal is essentially – diary/planner, journal, to do lists, notebook, budget tracker … and anything else you need … in one. For me, a bullet journal keeps me on track but does away with the need for a multitude of ‘systems’, and it’s simplified approach does allow you to ‘do more with less’. Click here for a quick lesson if you want to learn more or start your own.

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Journal Geek-ery right there: Just looking at them makes me smile, I am THAT bad

I hadn’t named this latest plan until it just struck me that I usually do – others have been Operation Self Care and Operation Fight Back – and then I knew that I wanted this one to be called Operation Thrive. I feel a bit emotional having just written that, because thriving means so very much to me. I had a taste of it earlier last year – when I had some support for a time. I survived but I plan to thrive is this blog’s tagline. Thriving is my recovery goal. Abuse recovery to me = thriving. I can’t wave a magic wand and cure my chronic health issues but when I’m living my life to the fullest alongside them, that’ll do me! When I’m thriving I’ll know that I’ve won, that despite all the pain, and grief, and terrible terrible loss, and so much time spent just existing let alone living, I’ll know that I’ve made it. I know that I’m already a winner in that I’m not bitter, and because I’m a good person and I am, by choice. very different to the people who abused me. BUT thriving, that’s the ultimate WIN.

Operation Thrive – plan initiated 10th June, 2017

PRIORITY 1: 

  • WRITING – finally this is coming top of the list and it’s staying there.
  • Ending isolation and reducing loneliness by increasing connection
  • Reinstating routine and regaining function
  • SELF CARE!
  • Being able to get out of my flat – and then get out and about locally
  • Getting my flat ‘immaculate’ ready for a routine inspection by the landlord’s agent
  • Re-engaging with GP and getting vital health checks done
  • Taking steps to begin to tackle disordered eating
  • Psychotherapy/Trauma therapy – it’s difficult to know where to place this because of difficulties/delays with the provision of it

PRIORITY 2:

  • Starting to rebuild fitness – and taking steps to resume physiotherapy treatment
  • Visiting dentist both to resume my treatment programme to restore my smile devastated by a dental phobia caused by abuse, and also to assess damage caused by latest crisis and create further treatment plan. (Delayed by illness and financial difficulty)
  • Optician –  have overdue eye test and purchase new specs. – also delayed by illness and financial difficulty.
  • P.I.P – make a new application for Personal Independence Payments

PRIORITY 3: – can only be undertaken once a support worker/P.A. is in place (assuming the local authority awards funding)

  • Back onto a calorie counted diet
  • Increased exercise – talking walks and going swimming – and once physiotherapy is complete joining an 10 week exercise management programme for people with disabilities/chronic illness – assuming I can get onto it, if not I’ve got a Plan B 🙂 !
  • Getting out and about beyond my immediate area and support groups
  • Restarting hobbies, building new ones and making new connections – join a choir (September) and an art group

There are sub-categories to some of the above – but you get the gist as it stands! Priority 1 is all now either underway or complete.

Getting back to work is a HUGE goal, but as I am not to try to run before I can walk, for a change, I’ve not yet included it on this plan. Once I’m settled into Priority 3s, I’ll add more!

The bulk of my Bullet Journalling is at the moment centred on ‘Daily Logs’ – a list of what’s happening and what’s to be done on any given day, and daily recovery focused journal entries that I’ve called ‘Recoverlogs’ – a term shamelessly snaffled from mental health campaigner and vlogger, Jonny Benjamin. You may have seen the brilliant Channel 4 film Stranger on the Bridge about his own mental health story.

To do lists keep me on track but are also a great motivator. It feels SO good to tick … ‘done’ ! Budgeting goes in there too, shopping lists, ideas, thoughts and plans for blog posts, notes for and on therapy sessions, and so on. This plan is no small undertaking. There is no one working on it with me, no one to oversee it. My social worker is classed as my ‘key worker’ but is only involved with me as far as carrying out a social care assessment and managing the application for funding to pay for some support. My GP doesn’t know the half of it, as there is never enough time to fill him in on all that’s going on for me. I hope there’ll be an opportunity to share the plan with him at our next appointment on 3rd July.

 

 

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Today in tweets.

This evening I decided to set up a Storify.com account and use some of my tweets to tell you about a key event today.

Unfortunately WordPress no longer support Storify code so I’m unable to embed the story directly into this post, but please click here to read it.

TTFN x

Operation Self Care

Regular readers may remember Operation Fight Back  – my action plan of early 2014 to help me to cope following the breakdown of my marriage and subsequent illness – here’s a sample. I needed to be as well as I could be in order to cope with the impending search for, and move to, a new home, in addition to my continuing efforts to rebuild my life – studying, plans for self employment etc. As it turned out, there was much more with which I was going to have to cope.

My health, which is already an issue, has suffered greatly because of all of that and particularly the ‘straw and camel event’ of Spring 2015. You can read more about that here and here.

I’ve written about self care on several occasions – you can find those posts, should you wish, by clicking on ‘self care’ in the tag cloud on my homepage. Self care was once anathema to me. My experiences of abuse led me to believe that self care was self-indulgent and that to indulge oneself was very wrong – certainly, at least, it was very wrong to indulge MYself in any way. I learned that I should … must, flog myself, metaphorically speaking, until I bled.

I’ve undergone several periods of counselling in the years since my abuse was disclosed and I cut myself off from what remained of my family. In the early days of counselling I learned to do away with the word should, replacing it instead with could. I also learned to have compassion for myself and that self care is an essential part of life. I learned that I am worthy of care. I also learned, after years of giving from an ’empty place’, that you cannot take care of others if you do not take care of yourself. I do have a tendency to forget the latter, and need to be reminded of it!

I know that self care is key to my being able to keep going … and ultimately to fulfil that dream of truly living. (I also know that I can’t do this alone and will need the help of others, but that is for another post.) There is much to say about self care and I know I will return to it. For now here are the basic tenets of Operation Self Care:

  • I will take care of myself physically – that includes showering regularly and brushing my teeth (depression can make you smelly!)
  • I will not withdraw but will connect with others as far as possible – using Twitter and my blog to supplement RL contact
  • I will write, write and WRITE some more – you can read here why writing is so important to me. I realise now that I have been continuing to let it fall off the bottom of my to do lists and how unhappy that has made me. I can still struggle to prioritise my needs, but I am determined from now on to always prioritise my writing. For starters, that means blogging daily, as far as is humanly possible.
  • I will do all I can to nourish myself with home-cooked food, despite my lack of money. You can read more about my new found connection with food and cooking – after abuse disconnected me from it – here.
  • I will always PACE MYSELF, I will acknowledge that I am a #spoonie, and that I am facing really challenging circumstances that would challenge anyone.
  • I will try not to fear judgement and will remember to tell myself that if someone thinks they could do better, that I’d like to see them try 😉
  • In addition to writing, I will consider other ways to incorporate things that make me happy into my life.
  • Exercise will form part of Operation Self Care, as it did Operation Fight Back, more about that in a future post.

As I have been writing. a veggie chilli has been simmering nicely in the kitchen and a second load of laundry is doing its thing. I have twenty more minutes on the clock* before I know I must stop, take time to eat and make every effort to unwind (it doesn’t come easy), before an early night. My housing support officer, newly appointed in light of the ‘straw and camel event’ and my subsequent decline, is visiting me tomorrow morning and I need to be in reasonable shape to best cope with that. She will be bringing me my first food parcel, after referring me to a local food bank; I’m still trying to process that.

*I can feel my #spoonie symptoms starting to make more of a nuisance of themselves. I hope to publish this post, send a tweet or two and rustle up a quick email reply to a pal, before the sands run out…

TTFN x

Operation Fight Back: Day 18 – Part Two and Day 19

The last couple of days have been … well … momentous is probably the word for it! There are several reasons for that, here’s more about two of them.

Yesterday I had my first job interview in a loooong time … and I survived 🙂 . It’s a post in mental health, just four days a month or thereabouts and an opportunity that I will grab with both hands if I’m offered it. My fingers are crossed.

Today I had my second appointment, in as many weeks, with my new GP (she is actually about to go on maternity leave so another change is on the cards). It was possibly the most satisfying – that’s perhaps not quite the word for it but I’m struggling to find another just now – appointment I’ve ever had. I’ve had chronic physical health problems for 15 years now. I’ve received diagnoses along the way but they have mostly either been vague or just plain inaccurate. Still problems remained, much was unexplained, and the impact on my quality of life was profound. I am an admirer of Christine Miserandino Donato author of the rather magnificent Spoon Theory . It’s an engaging read and explains well the realities of living with chronic illnesses like Christine’s and my own.

In the last three years despite being told that my suspected conditions are not progressive, I have gone on to develop many more symptoms including hair loss, further pain, dizziness, vertigo (having the sensation of motion although I am still) and skin problems. I have long thought it possible that I have an underlying autoimmune disorder. GP today agreed, ordered a battery of tests and referred me for an appointment with a specialist. I was quite honestly flabbergasted … I didn’t even have to beg!

I am not delighted to have to undergo tests and attend further appointments; I don’t want to be ill. The fact remains that I am experiencing illness which severely compromises my quality of life. I hope that at last real answers are on the horizon and I’ll no longer be left to live with it without knowing what is happening to me or having any idea of the prognosis. It’s also nigh on impossible to get any kind of financial support without concrete diagnosis (even then it’s far from easy).

It’s well documented (here’s an example) how physical health can be overlooked or sidelined in people who are experiencing mental illness. Indeed, during the worst of my major depression I lost count how many times I heard ‘oh that’ll be down to your depression/anxiety’; after recounting symptoms. Those symptoms were actually due to bile acid malabsorption, not related to depression or anxiety, and it was reading this article back in 2010 that finally ended a decade of crippling symptoms that had left me barely able to leave my home.

***

Yesterday’s treadmill stats: (no run today due to very early start for appointment at surgery. I actually felt a bit bereft at not being able to run; that’s not something I ever thought you’d hear me say!)
13mins 19 = a run of 11mins 19 (my longest yet) – 0.78 distance (furthest yet) and 70.9cals (highest yet)

Operation Fight Back: Day 17

Today did not start well as I slept badly and woke to mood still low.  I didn’t get going until around 2 o’clock this afternoon but after that I managed to attend a challenging appointment and make a number of stress inducing but vital telephone calls.

It’s late, I’m writing this on my smartphone and don’t have my specs to hand so I’ll leave it here for now except to say that, I have a job interview tomorrow.  Wish me luck!