I wish Admin. were an exciting place where I was having the time of my life.
Rebuilding my life after months in the depths of crisis is exciting. It feels really good to be making progress but, I’ll admit, the administration side of the process can be more wearying than any other – emails, calls, forms, research … chasing this person … approaching that organisation … researching grants … and trying to make head or tail of the personal budgets/direct payments system in the ongoing quest for social care support.
In the last couple of days alone I’ve …
- sent three emails to my social worker
- spent considerable time and ‘spoons’ researching support and treatment options outside of the NHS for my eating disorder. and drawn a blank beyond the one option I already knew about which may not be suitable.
- sent two emails regarding a local women’s support group – one a brief testimonial to support the application for funds to keep it going – another to update on my circumstances and inform the facilitator when I hope to be well enough to return.
- researched organisations offering grants for a convalescence/respite break, sought advice about my eligibility, printed application forms, and contacted health professionals to try to find one who could spare the time to make an application on behalf, as that’s how the system works.
- undertaken an online ‘test’ for Personal Independence Payments and carried out various tasks in preparation for making a new application, having been turned down last year. For those to whom it’s relevant, the test is here.
- spent time making notes and trying to prioritise the many current ‘hot potatoes’ and decide what to take to my therapy session earlier today, in order to make the best use of the 50 minute slot.
- emailed regarding restarting vital dental treatment stalled by serious illness.
- made numerous checklists to keep track of it all.
This week I still …
- need to contact several organisations and another person with disabilities who lives locally to try to get some clarity over the best option for me with the (haha) administration of the personal budget/direct payments – and all this before it’s even been confirmed that my application for funding – made by the social worker after several hours of assessment – has been approved. This is because the process is lengthy, and I’m told it will be further slowed if I’m not ready to go if/when approval is granted.
- need to keep in touch with friends – replying to emails, messages, tweets and so forth. This isn’t a chore. I want to be in touch, I appreciate their contact and it’s vital to my health and wellbeing, particularly as isolation and loneliness are a prominent factor in my life and have had a detrimental impact on my health. That said these tasks still take time and ‘spoons’.
- need to contact the charitable body which, last year, granted me funding for physiotherapy – it wasn’t available on the NHS. I had an assessment in February and was set to have a further 11 sessions when crisis hit and it had to be put on hold. I can’t even begin to explain the admin. now involved in trying to sort out a restart – both you and I would lose the will to live.
- there’s further admin. relating to budgeting and welfare payments
- there’s a mix up with my energy supplier – which owes me money – need to try to resolve that
- there’s an energy ‘switch’ to organise in order to avoid a price hike
- there are trips to the GP and hospital which currently necessitate various emails and texts to organise advocacy support where appropriate, or someone to ‘chum me’ there if that’s necessary,
- tomorrow there’s a visit from my landlord’s agent for a routine inspection.
Blimey, I feel weary just telling you about it, and that’s not all of it but you get the idea 😀 !
My limited ‘spoons’ have to go a long way. I wish the blessed admin would do itself and I could focus on everything else that needs my attention like therapy, exercise, my eating disorder and other aspects of recovery and self management, getting out and about, dental treatment, writing, etc, not to mention the mere basics of daily living.
I think I needed to get that off my chest. Thanks for bearing with me!